Your Resource > Approved Concept Proposals

The table below lists all CCSS approved concept proposals. You can search the proposals by using one or both methods below:

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Proposal# Concept Title Lead Author Approval Year Citation Working Group
98-01 Mortality rates and causes of death in survivors of childhood and adolescent cancer. Ann Mertens 1998 J Clin Oncol 2001 Jul 1;19(13):3163-72 Biostatistics & Epidemiology
98-02 Pregnancy outcomes of survivors diagnosed during childhood and adolescence. Dan Green 1998 Am J Obstet Gynecol 2002 Oct;187(4):1070-80 (female
J Clin Oncol 2003 Feb 15;21(4):716-21 (male)
Reproductive Outcomes
98-04 Second malignant neoplasms following childhood cancer. Joe Neglia 1998 J Natl Cancer Inst 2001 Apr 18;93(8):618-29 Second Malignancy
98-06 Thyroid disease in survivors of childhood and adolescent Hodgkin's disease. Chuck Sklar 1998 J Clin Endocrinol Metab 2000 Sep:85(9):3227-32 Chronic Disease
98-09 Smoking among childhood cancer survivors. Karen Emmons 1998 J Clin Oncol 2002 Mar 15;20(6):1608-16 Cancer Control
98-10 Marriage in survivors of childhood cancer. Amanda Rauck 1998 Med Pediatr Oncol 1999 Jul;33(1):60-3 Biostatistics & Epidemiology
98-12 Neurological, psychological, and risk behavior sequelae in survivors of childhood-acquired Hodgkin's disease: an age at diagnosis-matched comparison with survivors of non-Hodgkin's lymphoma and survivors of bone tumors. Brad Zebrack 1998 Pediatrics 2002 Jul;110(1 Pt 1):42-52 Psychology
98-13 Pain sequelae in survivors of childhood Hodgkin's disease: a case-control comparison with survivors of childhood NHL and bone tumors. Lonnie Zeltzer 1998   Psychology
98-15 Utilization of special education services among adult long-term survivors of childhood cancer. Pauline Mitby 1998 Cancer 2003 Feb 15;97(4):1115-26 Psychology
98-16 Insurance and insurability in the CCSS cohort. Karen Emmons
Elyse Park
1998 J Clin Oncol 2005 Dec 20;23(36):9187-97 Cancer Control
98-18 Cardiac outcome in survivors of childhood Hodgkin's disease. ZoAnn Dreyer 1998   Chronic Disease
98-19 Suicide and suicidal ideation among childhood cancer survivors. Christopher Recklitis 1998 J Clin Oncol 2010 Feb 1;28(4):655-61. Psychology
98-20 Physical disabilities after treatment for pediatric Hodgkin's disease. Melissa Hudson 1998   Psychology
98-21 Predicting loss to follow-up and successful tracing in a cohort of childhood cancer survivors. Ann Mertens 1999 J Clin Epidemiol 2004 57:933-44 Biostatistics & Epidemiology
98-22 Second primary neoplasms (SPNs) of the central nervous system among long-term survivors of childhood cancer. Joe Neglia 1999 J Natl Cancer Inst 2006 Nov 1;98(21):1528-37 Second Malignancy
98-23 The Childhood Cancer Survivor Study: A collaborative study of the late-effects in children with cancer. Les Robison 1999 Minn Med 2005 Apr;88(4):45-9 Biostatistics & Epidemiology
99-02 Confirmatory factor analysis of BSI depression and anxiety scales in the survivor population. Christopher Recklitis 2000 Psychol Assess 2006 Mar;18(1):22-32 Psychology
99-03 Barriers to long-term health care for survivors of childhood cancer. Kevin Oeffinger 2000 Ann Fam Med 2004 Jan-Feb;2(1):61-70 Biostatistics & Epidemiology
99-04 Health practices among childhood cancer survivors: implications for cancer control. Jim Gurney
Mark Yaezel
2000 Cancer 2004 Feb 1;100(3):631-40 Cancer Control
00-01 Obesity in adult survivors of childhood cancer. Kevin Oeffinger 2000 J Clin Oncol 2003 Apr 1;21(7):1359-65 Chronic Disease
00-02 Pulmonary complications in survivors of childhood and adolescent cancer. Ann Mertens 2000 Cancer 2002 Dec 1;95(11):2431-41 Chronic Disease
00-03 Employment status of adult survivors of childhood cancer. Jenny Pang 2000 Pediatr Blood Cancer 2008 Jan;50(1):104-10 Biostatistics & Epidemiology
00-04 Family history of cancer among first-degree relatives. Debra Friedman 2000 Cancer Epidemiol Biomarkers Prev 2005 Aug;14(8):1922-7 Genetics
00-05 Non-neurological effects in brain cancer survivors. Jim Gurney 2000 Cancer 2003 Feb 1;97(3):663-73 Psychology
00-06 Second thyroid carcinomas. Alice Sigurdson 2000 Lancet 2005 Jun 11-17;365(9476):2014-23 Second Malignancy
00-07 Post-treatment stroke. Dan Bowers
D. Elizabeth McNeil
2000 J Clin Oncol 2005 Sep 20;23(27):6508-15 Chronic Disease
00-08 Non-treatment risk factors for breast cancer. Lisa Kenney 2000 Ann Intern Med 2004 Oct 19;141(8):590-7 Second Malignancy
01-01 Second malignant neoplasms after Wilms tumor. Norman Breslow 2001   Second Malignancy
01-02 Neurologic outcomes of brain cancer survivors. Roger Packer 2001 J Clin Oncol 2003 Sep 1;21(17):3255-61 Neurology
01-03 Health concerns in survivors. Ann Mertens 2002   Cancer Control
01-04 Treatment-related breast cancer. Peter Inskip 2002 Ann Intern Med 2004 Oct 19;141(8):590-7 Second Malignancy
02-01 Hormonal and neurological late effects of treatment in CCSS cases diagnosed with first primary Rhabdomyosarcoma (RMS). Judy Punyko 2002 Psychooncology 2007 16:26-37 Chronic Disease
02-02 Quality of life among survivors of pediatric lower extremity bone tumors. Rajaram Nagarajan 2002 Br J Cancer 2004 Nov 29;91(11):1858-65 Chronic Disease
02-03 Genotypes in Hodgkin's disease second malignancies. Ann Mertens 2002 Cancer 2004 Sep 15;101(6):1463-72 Second Malignancy
02-05 Gene-environment interactions in cardiac events among survivors. Smita Bhatia 2002   Chronic Disease
02-06 Genetic susceptibility and risk of obesity in survivors of ALL. Julie Ross 2002 J Clin Oncol 2004 Sep 1;22(17):3558-62 Chronic Disease
02-07 Occurrence of nonmelanoma skin cancer (NMSC) in survivors. JoAnna Perkins 2002 J Clin Oncol 2005 Jun 1;23(16):3733-41 Second Malignancy
02-08 Association of CYP3A5 and breast cancer following Hodgkin disease. Debra Friedman 2002   Second Malignancy
02-09 Prevalence and severity of physical late effects in adult survivors of childhood cancer. Kevin Oeffinger 2002 N Engl J Med 2006 Oct 12;355(15):1572-82 Chronic Disease
02-12 Genetic and reproductive effects of radiation and chemotherapy. John Boice 2002 Health Phys 2003 Jul;85(1):65-80 Reproductive Outcomes
02-13 Low birth weight among offspring. John Boice 2002 JNCI 2006 Oct;98(20):1453-61 Reproductive Outcomes
02-14 Cautionary note in the analysis of second malignant neoplasm risk. Yutaka Yasui 2002 Am J Epidemiol 2003 Dec 1;158(11):1108-13 Biostatistics & Epidemiology
02-15 Evaluation of cancer treatment data quality. John Whitton 2002   Biostatistics & Epidemiology
02-16 Predictions of second malignant neoplasm incidence. Yan Liu 2003 Pediatr Blood Cancer 2008 May;50(5):1026-31 Biostatistics & Epidemiology
02-17 Complementary and alternative modality use in adult survivors. Amy Hays
Ann Mertens
2003 Pediatr Blood Cancer 2008 Jan;50(1):90-7 Psychology
02-18 Long-term outcomes in survivors who received hematopoietic stem cell transplant with TBI. K. Scott Baker 2003   Chronic Disease
03-01 Health status of African American adult survivors. Sharon Castellino 2003 J Clin Oncol 2005 Sep 20;23(27):6499-507 Cancer Control
03-02 Risk of cancer among twins of long-term cancer survivors. Nina Kadan-Lottick 2003 Pediatr Blood Cancer 2006 Apr;46(4):476-81 Genetics
03-05 Prevalence of fatigue and sleep disturbance in survivors. Daniel Mulrooney 2003 Sleep 2008 Feb 1;31(2):271-81 Psychology
03-06 Risk of a carcinoma as a second primary neoplasm. Mylene Bassal 2003 J Clin Oncol 2006 Jan 20;24(3):476-83 Second Malignancy
03-07 Fertility rates in long-term survivors Daniel Green 2003 J Clin Oncol 2009 Jun 1;27(16):2677-85 (female)
J Clin Oncol 2010 Jan 10;28(2):332-39 (male)
Reproductive Outcomes
03-08 Factors associated with compliance in providing biological specimens. Pauline Mitby 2003   Biostatistics & Epidemiology
03-09 Growth and neuroendocrine sequelae associated with central nervous system irradiation in childhood acute lymphoblastic leukemia (ALL) survivors. Eric Chow 2003 J Pediatr 2007 Apr;150(4):370-5, 375.e1 Chronic Disease
03-10 New approaches to explaining health-protective and health-risk behaviors in childhood cancer survivors. Cheryl Cox 2003   Cancer Control
04-02 Characterizatrion of drinking in childhood cancer survivors compared to general population. Anne Lown 2004 Addiction 2008 Jul;103(7):1139-48 Cancer Control
04-03 Outcome after second malignancy neoplasm in adult survivors. Rob Goldsby 2004   Second Malignancy
04-05 The long-term complications of treatment in neuroblastoma survivors. Chuck Sklar
Laverdiere
2004 J Natl Cancer Inst 2009 Aug 19;101(16):1131-40 Chronic Disease
04-06 Epidemiology and correlates of posttraumatic reponses to cancer treatment in young adult childhood cancer survivors (Note: Incorporates 04-06, 04-07, 04-08). Margaret Stuber 2004   Psychology
04-09 Second primary sarcomas in survivors of pediatric malignancy. Tara Henderson 2004 J Natl Cancer Inst 2007 Feb 21;99(4):300-8
2nd case-control study - ongoing
Second Malignancy
04-10 Physical disability and limitations in physical function in long-term neuroblastoma survivors. Jim Gurney 2004   Chronic Disease
04-11 Physical activity in adult survivors of childhood acute lymphoblastic leukemia. Todd Florin 2004 Cancer Epidemiol Biomarkers Prev 2007 Jul;16(7):1356-63 Chronic Disease
04-12 Sun sensitivity, sun exposure, sun protection behavior and risk of skin cancer (melanoma and NMSC). Ann Mertens 2004   Second Malignancy
04-13 The long-term complications of treatment of Ewing sarcoma. Jill Ginsberg 2004   Chronic Disease
04-14 Survival, cause-specific mortality and second cancer incidence after non-Hodgkin lymphoma. Elizabeth Bluhm 2004 Blood 2008 Apr 15;111(8):4014-21 Chronic Disease
04-15 The psychosocial sequelea of cancer survivorship from leukemia, brain tumors, Wilms, sarcomas and neuroblastomas diagnosed in infancy versus after infancy. Vanna Axia 2004   Psychology
05-01 The risk of adverse bone outcomes. Nina Kadan-Lottick 2005 J Clin Oncol 2008 Jun 20;26(18):3038-45 Chronic Disease
05-02 Social adjustment in adolescent survivors of childhood cancer. Kris Ann P. Schultz 2005 J Clin Oncol 2007 Aug 20;25(24):3649-56 Psychology
05-03 Neurosensory complications. Kimberly Fowler 2005   Chronic Disease
05-04 The risk of disease recurrence and second malignancies following pregnancy in female survivors. Berrin Ergun-Longmire 2005   Second Malignancy
05-05 Health related quality of life in adult survivors of childhood Wilms tumor or neuroblastoma. Paul Nathan 2005 Pediatr Blood Cancer 2007 Oct 15;49(5):704-15 Psychology
05-06 Long-term survivors of childhood acute myeloid leukemia. Daniel Mulrooney 2005 Cancer 2008 May 1;112(9):2071-9 Chronic Disease
05-07 Late effects and smoking among survivors of childhood cancer: The role of attention, overweight, and pubertal onset in adolescent smoking behavior. Lisa Schum 2005   Cancer Control
05-09 Influence of regional access on follow-up care for adult survivors of pediatric cancer. Deidre Caplin 2005   Cancer Control
05-10 Blood transfusion history and Hepatitis C infection. Neyssa Marina 2005 Cancer 2010 Feb 15;116(4):974-82 Chronic Disease
05-11 Communicating with childhood cancer survivors: An analysis of receiver characteristics and communication content, timing and effects. Jeanne Steele 2005   Cancer Control
05-13 Dental health among long-term survivors of childhood cancer. Sue Kaste 2005 Cancer 2009 Dec 15;115(24):5817-27 Chronic Disease
05-14 The long-term outcomes of childhood acute lymphoblastic leukemia (ALL) survivors. Rajen Mody 2005 Blood 2008 Jun 15;111(12):5515-23 Chronic Disease
05-15 Physical performance and health related quality of life. Kirsten Ness 2005 Ann Intern Med 2005 Nov 1;143(9):6390-47 Psychology
05-16 Risk of increased morbidity and mortality in underweight survivors. Lillian Meacham 2005 Cancer 2005 Apr 15;103(8):1730-9 Chronic Disease
05-17 Long-term smoking cessation outcomes among childhood cancer survivors in Partnership for Health (a follow-up to the PFH study outcomes paper, published in Journal of Clinical Oncology, 2005 September 23 (27);6516-6523). Karen Emmons 2005 J Clin Oncol 2009 Jan 1;27(1):52-60 cancer Control
05-19 Late recurrence in survivors of childhood and adolescent cancer. Karen Wasilewski 2005 J Natl Cancer Inst 2009 Dec 16;101(24):1709-20. Biostatistics & Epidemiology
05-20 Chronic health conditions and function after non-Hodgkin lymphoma. Elizabeth Bluhm 2006   Chronic Disease
05-21 Clustering of cardiovascular risk factors. Lillian Meacham 2006 Cancer Epidemiol Biomarkers Prev 2010 Jan;19(1):170-81. Chronic Disease
05-22 Long-term survivors of childhood osteosarcoma. Rajaram Nagarajan 2006   Chronic Disease
06-01 Determining the best comparison group for a cancer survivor study. Anne Jurek 2006   Biostatistics & Epidemiology
06-02 Obesity in survivors of childhood acute lymphoblastic leukemia. Edward Garmey 2006 J Clin Oncol 2008 Oct 1;26(28):4639-45 Chronic Disease
06-03 Radiation and thyroid cancer in the CCSS: Cohort analysis and alternative methods for dosimetry. Cecile Ronckers 2006 Radiat Res 2006 Oct;166(4):618-28 Second Malignancy
06-04 Updated late mortality rates and cause of death in CCSS. Ann Mertens 2006 J Natl Cancer Inst 2008 Oct 1;100(19):1368-79 Biostatistics & Epidemiology
06-05 The radiosensitivity of the human oocyte: a revised estimate using data from the CCSS on women who had developed premature ovarian failure following a known dose of radiation to the ovary. W. Hamish B. Wallace 2006   Reproductive Outcomes
06-06 Neuropsychological status in long-term survivors of pediatric brain tumors. Leah Ellenberg 2006 Neuropsychology 2009 Nov;23(6):705-17. Psychology
06-07 Executive functioning in long-term survivors of non-CNS childhood cancers: Two phase concept proposal. Nina Kadan-Lottick 2006   Psychology
06-08 Neurocognitive and Psychosocial Correlates of Adaptive Functioning in Survivors of Childhood Leukemia and Lymphoma. Nina Kadan-Lottick 2006   Psychology
06-09 General and risk-based health care: comparison of the United States and Canada. Paul Nathan 2006 Cancer Control
06-10 A longitudinal study of predictors of pain in long-term survivors of childhood cancer Qian Lu 2006   Psychology
06-11 School attendance following cancer. Eric Waldon 2006   Psychology
06-12 Marriage patterns in adult suvivors of non-CNS childhood cancers. Janson
Nina Kadan-Lottick
2006 Cancer Epidemiol Biomarkers Prev 2009 Oct;18(10):2626-35. Psychology
06-13 Abnormal timing of menarche in survivors of childhood central nervous system tumors. Greg Armstrong 2006 Cancer 2009 Jun 1;115(11):2562-70 Chronic Disease
07-01 Incidence of cataract in relation of radiation dose in survivors of childhood and adolescent cancer. Gabriel Chodick 2007   Chronic Disease
07-03 Long-term neurologic sequelae in adult survivors of childhood acute lymphoblastic leukemia. Robert Goldsby 2007 J Clin Oncol 2010 Jan 10;28(2):324-31. Neurology
07-04 Psychological outcomes of siblings of adult long-term survivors of childhood cancer. David Buchbinder 2007   Psychology
07-05 Long-term outcomes of childhood central nervous system tumor survivors: A report from the Childhood Cancer Survivor Study. Greg Armstrong 2007 J Natl Cancer Inst 2009;101(13):946-958 Neurology
07-06 Follow-up of long-term survivors of Hodgkin's Disease diagnosed in childhood and adolescence - A report from the Childhood Cancer Survivors Study. Sharon Castellino 2007   Chronic Disease
07-07 Physical activity patterns and predictors of sedentary lifestyle among adult survivors of childhood cancer: A report from the Childhood Cancer Survivor Study. Kiri Ness 2007 Cancer 2009 May 1;115(9):1984-94 Chronic Disease
07-08 Long-term outcomes after childhood cancer in infancy, health status and chronic conditions: a report from the Childhood Cancer Survivor Study. Lynda Vrooman 2007   Chronic Disease
07-09 Linear Mixed Effects Quantile Regression (LMQR) Model. Mi-Ok Kim 2007   Biostatistics & Epidemiology
07-10 Late Hospitalizations in Five-Year Survivors of Childhood and Adolescent Cancer. Beth Kurt 2007   Cancer Control
07-11 Reliability and validity of a short neurocognitive rating scale in the Childhood Cancer Survivor Study. Kevin Krull 2007 Cancer 2008;113:2188-97 Psychology
08-01 Unemployment and occupational type among childhood cancer survivors: A report from the Childhood Cancer Survivor Study. Anne Kirchhoff 2007   Cancer Control
08-02 Prevalence and Clustering of Multiple Behavioral Risk Factors in Adult Survivors of Childhood Cancer: Implications for Prevention. Lisa Klesges 2008   Cancer Control
08-03 Adolescent behavior problems, health behavior, and social outcomes in the Childhood Cancer Survivor Study. Kevin Krull Pending   Cancer Control
08-05 Subsequent salivary gland carcinomas in the Childhood Cancer Survivor Study cohort. Houda Boukheris 2008   Second Malignancy
08-06 Cancer screening practices in survivors of childhood cancer. Paul Nathan 2008   Cancer Control
08-08 Predicting Neurocognitive and Neuropsychological Impairment by using Genetic Polymorphisms in Medulloblastoma Survivors. Julienne Brackett 2008   Psychology
08-09 Cancer Screening and Prevention Practices of Siblings of Survivors of Childhood Cancer. David Buchbinder 2008   Cancer Control
08-10 Physical Therapy and Chiropractic Use in Adult Survivors of Childhood Cancer: Impact on Health-Related Quality of Life. Michele Montgomery 2008   Chronic Disease
08-11 Neurocognitive and emotional problems predict health behavior outcomes. Kevin Krull 2008   Psychology
08-12 Characterization of genomic alterations in radiation-related breast cancer using array-CGH (comparative genomic hybridization). Rose Yang 2008   Genetics
09-01 Impact of Chronic Disease on Neurocognitive and Psychosocial Functions. Neelam Jain 2009   Psychology
09-02 Location of CNS Directed Radiotherapy to Predict Neurocognitive, Psychological and Health Related Quality of Life Outcomes in Survivors of CNS Tumors. Greg Armstrong 2009   Psychology
09-03 An examination of the association between fatigue, vitality and sleep disturbance, and neurocognitive functioning in adult survivors of childhood cancer. Nancy Clanton 2009   Psychology
09-04 Gastrointestinal Sequelae in Adult Survivors of Childhood Cancer. Robert Goldsby 2009   Chronic Disease
09-05 Predictors of physical activity in survivors of lower extremity sarcoma. Meredith Wampler 2009   Chronic Disease
09-06 Second Malignancies of the Gastrointestinal Tract. Tara Henderson 2009   Second Malignancy
09-07 Twenty-five Year Follow-up Among Survivors of Childhood Wilms' Tumor. Amanda Termuhlen 2009   Chronic Disease
09-08 Feasibility of recruiting CCSS participants to a nearby cancer center to participate in clinical evaluation: a needs assessment survey. Ann Mertens 2009   Biostatistics & Epidemiology
09-10 The Multifactorial Etiology of Obesity among CCSS Participants. Daniel Green 2009   Chronic Disease
09-11 Fertility Rates in Long-Term Survivors of Acute Lymphoblastic Leukemia Daniel Green 2009   Reproductive Outcomes
09-12 Multiple Subsequent Neoplasms. Les Robison 2009 Second Malignancy
09-13 Cardiovascular risk factor cluster and cardiovascular outcomes in adult survivors of pediatric cancer. Greg Armstrong 2009   Chronic Disease
09-14 Cost Effectiveness of Cardiac Guideline for Survivors of Pediatric Cancers. Lennie Wong 2009   Biostatistics & Epidemiology
09-15 Genitourinary Outcomes in Survivors of Childhood Cancer. Margarett Shnorhavorian 2009   Chronic Disease
09-16 First and Recurrent Stroke in Long-term Survivors of Childhood Cancer. Heather Fullerton 2009   Psychology
09-17 Late Occurring Secondary Leukemia in Survivors of Childhood Cancers. Kerri Nottage 2009   Second Malignancy